Very funny man, Dylan Moran talking about his friends who have no kids. Hilarious!
So I thought I'd take the opportunity to share with you what it's like for someone like myself who prefers 'naturelle que possible'. What do I do when my CF needs more attention than normal? First, I had a sputum test cultured as soon as the colour changed and I felt more production. The growth is moderate, fortunately it's been caught before it got out of control.
Medication wise, I started on Colistin inhaled antibiotic as soon as I started feeling poorly, but it wasn't improving at a satisfactory rate. So added Ciprofloxicin dispite the pseudo being 'resistant', I did this a few days ago and have felt the improvement within a day. Hypertonic saline 2-3 times a day, double Pulmozyme, Bronchitol, Ventolin & atrovent 3 times a day.
Physiotherapy: I pulled out The Vest, Zen Chi 2 times a day. pep, percussion's, trampolining. I love it, not just for kids! *ha ha, neighbours laugh at me jumping out there, but they should give it a go to be honest, having fun and keeps you fit! (before Kalydeco I couldn't trampoline at all, the impact would hurt my lungs, not anymore!) I dedicate a lot of hours a day to all the above during periods like this.
Naturally: I consolidate my energy. I do what I can manage, doing all the above tires me out a lot, so doing all my natural treatments is more difficult to fit in whilst looking after me and children. I increase my juices to at least two litres a day. I can't tolerate harsh thing on my tummy due to cipro, so haritaki is temporarily on the wayside. I increase my LGG probiotic, 8 Flax seed oil capsules, take Iron + Vit C. Making colostrum, whey powder yogurt drinks. Cucumin reduced to two capsules a day. 1 teaspoon of bicarbonate soda a day. I try to alkaline my body as much as possible. Cut out meat. Increase vegetables. Take Colloidal silver. Inhaled glutathione. Drink extra filtered water.
I have a CF clinic appointment tomorrow, so we will see what the next step is. I hope to continue to improve, schools back so I have more time to concentrate on getting well... I loathe IV antibiotics (doesn't everyone!!) especially because I am allergic to ALL of them. They desensitise me to them and I have to be attached to a 24 hour drip to keep the levels right. The desensitisation stops welts, but I still have a very druggie achy feeling, particularly in my head. This is the second time since starting Kalydeco I've been close to doing IV antibiotic, but with a little bit more effort I hope to avoid it again, but if I have to do a course I look forward to a clean slate and will focus on detoxing the drugs from my system. I'm curious to see if I could become pseudo free now I'm on Kalydeco!
One things for sure it's time like these that Kalydeco shines. I would have been admitted last week if it weren't for these two little blue pills... it's given me a chance to fight back properly. It's brilliant! Let's see what tomorrow brings...